2015
DOI: 10.3111/13696998.2015.1016228 View full text |Buy / Rent full text
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Abstract: Objective: To examine the direct and indirect costs of hemophilia care among persons with hemophilia A in the US. Methods:Observational data were obtained from HUGS-Va, a multi-center study from six federally supported hemophilia treatment centers (HTCs). Eligible individuals completed a standardized initial questionnaire and were followed regularly for 2 years to obtain information on work or school absenteeism, time spent arranging hemophilia care, and unpaid hemophilia-related support from caregivers. Data … Show more

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